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Nastya - News update - May 2008

 

Dear Friends

I am writing with some very happy news about Nastya and her Mum.  Over the past two years, since we first started fund raising for Nastya’s medical treatment we have tried to keep you up to date with how she is getting on by sending newsletters and photographs.   You have been more than generous and we are so very, very grateful. 

 

Things, though, have changed a lot since May last year.  You will recall that there were such positive reports from the Great Ormond Street team that thought was being given to starting surgery on Nastya’s hands.  We were beginning to plan for further trips for assessment and treatment.

However fate intervened!  Last year I had a weekend commitment away from home so arranged for Nastya and her Mum (Alyona) to stay with the Founding Director of the Charity in Cardiff where, at a visit to a children’s farm park, she met the young farmer who owned the business and they fell in love!


‘Anastasia’(Nastya) on  her 6th birthday
 

The Welsh farmer subsequently visited Alyona and her parents in Russia, and in July, with parental blessing, Alyona and Nastya returned to Wales where both flourished.  Nothing could be better than the open air and a healthy diet.  Alyona began working on the farm, working long hours and enjoying every minute of it; while Nastya was enrolled at a school in Wales in a class of only 10. She was immediately accepted there and is now the only fully bi-lingual child in her class, speaking English with the most beautiful Welsh accent!   Welsh farmer clearly adores her and talks proudly of her progress since she has been at the farm.  She is healthy, strong and so well integrated.  Her skin is clearer than we have ever known it and she has not had any chest infections or the constant fluey colds to which she so regularly became victim in Minsk.  The school photo above gives some idea of how she has progressed.

 

A lot of immigration red tape was needed but everything was done ‘by the book’ and the couple obtained official permission to marry on 17 May.  It was such a very happy occasion and there were lots of photos which we will put on the website.

Nastya’s health currently is being monitored privately, free of charge, by local specialists in Cardiff in consultation with Great Ormond Street.   I am not sure yet but there may now be entitlement to NHS treatment but the rules on this keep changing.  Whatever the regulations Nastya continues to need very specialist health care.  Her hands will need attention sooner rather than later and major, extremely expensive, surgery will be required on her skull in 3 or 4 years time.

In view of the uncertainty we have ring fenced the fund and temporarily stopped fund raising for Nastya’s treatment.  During the 3 years we have raised the magnificent sum of £15,135 (excluding gift aid of £2,278).  We have spent £8,272 on her treatment so far leaving a balance of £6,863.  It means that we have spent approximately 55% of the total. 

 

When the situation in respect of future funding of treatment is clear it will be published on the web site.  When that happens we will write again to offer a choice between returning approximately 45% of your donation, or for the balance to be transferred to other individual children whose details you can read about on the website or you can phone or write to me.  These, though, are also children who have very special needs and have been abandoned by their parents.

 

Of necessity this has been a very truncated and edited version of events.  Please do feel free to phone or make contact asking for more detail.   We are so very grateful for your wonderfully generous support for all our needy children and would be only too happy to talk to you if you would like to know more.   

 

I wish you all peace and happiness.

Warmest regards